28 Apr, 2014Important Discovery In Fibrolamellar Hepatocellular Carcinoma By A Teen Patient


Elena Simon is just an average teenage girl, one who enjoys dancing and acting, and plans on attending Harvard in the fall to…

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20 Mar, 2014The Trials of Rare Disease Clinical Research


While we previously discussed how rare disease research has dramatically increased in both academic and industrial research, clinical trials of potential rare disease…

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31 Dec, 2013CNS Therapeutics: Restrategizing Pharmaceutical Development


The need for CNS therapeutics is on the rise.  Neurological diseases are expected to increase steadily in the coming years.  Previously, we addressed…

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27 Dec, 2013CNS Therapeutics: Is the Risk Worth the Reward?


More than $2 trillion dollars a year are spent on treatments for CNS disorders.  One in three people over 80 currently has Alzheimer’s…

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08 Oct, 2013The Way to Patient-Centered Outcomes Research – Part 3


Patient perspective (patient-centered outcomes) is a crucial element in addressing health and illness issues for individuals on therapy. In the final article in…

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01 Oct, 2013Patient-Reported Outcomes In Cancer Management – Part 2


A personalized medicine approach to clinical cancer therapy does not necessarily translate into a patient-centered approach as discussed in part 1 of this…

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26 Sep, 2013Patient-Centered Outcomes in the Clinic – Part 1


In different regulatory and research settings, it is now being realized that the need to consider patient-centered outcomes is paramount. We invited Dr Sandeep…

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07 Mar, 2013How To Fight Rare Disease


Working on the Rare Disease Science Challenge has shown me that everybody wants to support rare disease in many different ways, which is…

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28 Feb, 2013Winning Over Rare Disease


The Rare Disease Science Challenge: Be HEARD is entering its next phase. After 77 applicants covering 67 rare diseases, we have decided on…

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30 Jan, 2013Open Science Coming to San Diego


Carlsbad, CA is soon to be home to San Diego’s own community laboratory space. Much along the lines of Genspace in NYC and…

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