Real-world data (RWD) have become a cornerstone of clinical development and commercial strategy, yet traditional sources — electronic health records, claims, and administrative data — routinely leave out the perspective that matters most: the patient's. Symptoms, lived experiences, adherence challenges, and treatment impact often go uncaptured, creating blind spots that limit the value of real-world evidence (RWE).
In this webinar, Veradigm experts Mac Bonafede, PhD and Janna Manjelievskaia, PhD explore how patient-generated insights can be systematically captured, validated, and integrated into research-ready datasets at scale. Drawing on structured surveys, interviews, and patient engagement tools — including the FollowMyHealth® from Veradigm platform — they'll walkthrough the full journey of patient-generated RWD: from data collection and quality review, to linkage with clinical and claims records, to analytics that inform regulatory, clinical, and commercial decisions.
Through practical, real-world examples, this session demonstrates how centering the patient voice doesn't just enrich existing datasets — it fundamentally elevates the quality, completeness, and impact of RWE.
Key Learnings:
- Capture the missing patient perspective: Learn how patient-generated data fills critical gaps left by EHR and claims data.
- Create richer, research-ready datasets: Discover how patient-reported insights can be validated and linked with clinical and claims data.
- Enhance the impact of RWE: See how patient-centered data strengthens evidence for regulatory, clinical, and commercial decision-making.
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