Sponsored by:

Veradigm

Filling the Gap: Integrating Patient-Generated Data into Real-World Evidence

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Date:
Time (ET):
11:00 AM
Duration (min):
60
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Veradigm
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Real-world data (RWD) have become a cornerstone of clinical development and commercial strategy, yet traditional sources — electronic health records, claims, and administrative data — routinely leave out the perspective that matters most: the patient's. Symptoms, lived experiences, adherence challenges, and treatment impact often go uncaptured, creating blind spots that limit the value of real-world evidence (RWE).

In this webinar, Veradigm experts Mac Bonafede, PhD and Janna Manjelievskaia, PhD explore how patient-generated insights can be systematically captured, validated, and integrated into research-ready datasets at scale. Drawing on structured surveys, interviews, and patient engagement tools — including the FollowMyHealth® from Veradigm platform — they'll walkthrough the full journey of patient-generated RWD: from data collection and quality review, to linkage with clinical and claims records, to analytics that inform regulatory, clinical, and commercial decisions.

Through practical, real-world examples, this session demonstrates how centering the patient voice doesn't just enrich existing datasets — it fundamentally elevates the quality, completeness, and impact of RWE.

Key Learnings:

  • Capture the missing patient perspective: Learn how patient-generated data fills critical gaps left by EHR and claims data.
  • Create richer, research-ready datasets: Discover how patient-reported insights can be validated and linked with clinical and claims data.
  • Enhance the impact of RWE: See how patient-centered data strengthens evidence for regulatory, clinical, and commercial decision-making.

Presenters

Mac Bonefede

,

PhD

Veradigm
Vice President, RWE
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Janna Manjelievskaia

,

Veradigm
Director, HEOR
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Sponsor

Veradigm

Veradigm is a health information technology, analytics, and intervention solutions company. We are dedicated to simplifying the complicated healthcare system with next-generation technology and solutions, transforming healthcare from the point-of-care to everyday life.

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