In this webinar, panelists address integrating patient-centered research into real-world studies, focusing on diversity, equity, and inclusion (DEI), and developing systemic approaches for a more equitable research ecosystem.
Regulatory bodies and government agencies often require stakeholder engagement in drug development and clinical research studies, however, industry sponsors have been slower to adopt patient-centered research strategies into their real-world research. While there is a growing emphasis on efforts to advance diversity, equity, and inclusion (DEI), key barriers to integrating patient-centered research into industry-sponsored real-world studies remain.
Panelists explore tensions created by different core values held by stakeholders and the reasons for the somewhat fragmented and methodologically limited status quo. A framework used to transform patient-centered research from a singular method into a company-wide philosophy is presented, along with industry examples highlighting patient-centric application, with a focus on advancing health equity. Potential solutions to support a more equitable and inclusive research ecosystem is also proposed.
Panelists are key stakeholders in industry-sponsored real-world studies focused on how patient advocates, contract research organizations (CROs), and life sciences companies can work together to bring a more systemic, DEI-focused, and integrated approach to patient-centered research.
Key Topics Include:
- Demystifying barriers and highlighting factors that facilitate the integration of patient-centered strategies into research study design, conduct, and dissemination.
- Real-world examples showcasing successful applications of patient-centric approaches in industry-sponsored studies with an emphasis on advancing health equity.
- Exploring patient-identified challenges and benefits to incorporating patients and their perspectives into real-world research.
- Identifying strategies and best practices for building a meaningful, impactful, and effective patient engagement strategy for research that centers the patient and builds trust between patients and research communities.
Presenters
Aarti Patel
Aarti Patel, PharmD, MBA serves as the Scientific Partnerships & Population Research Group Director at Johnson & Johnson Scientific Affairs (JJSA). In this capacity, she strategically collaborates with stakeholders to generate evidence and resources that can inform health systems as they enable population health management and drive health equity. Formerly with Boehringer Ingelheim Pharmaceuticals, Inc, Aarti contributed to health economics and outcomes research for cardiovascular and neuroscience therapeutic areas. She also completed a Pharmacoeconomics and Outcomes Research Fellowship at University of Connecticut, where she led diverse clinical, economic, and outcomes research projects. Aarti earned her PharmD and MBA from Mercer University and is currently a candidate of Masters in Health Care Innovation at University of Pennsylvania.
Sarah Daugherty
Sarah Daugherty, PhD MPH, is a Principal Scientist at Carelon Research with expertise in genetic epidemiology, oncology, health outcomes research, and patient-centered outcomes research. In her role at Carelon Research, Dr. Daugherty provides senior leadership and oversight for a broad range of patient-centered research studies using qualitative and quantitative methods. Dr. Daugherty values multi-stakeholder engagement to ensure the development of meaningful and relevant research and has co-produced innovative research in partnership with a broad array of healthcare research stakeholders.
Prior to joining Carelon Research, she led prospective and retrospective cohort studies in the Division of Cancer Epidemiology and Genetics at the National Cancer Institute, oversaw comparative effectiveness research studies at the Patient-Centered Outcomes Research Institute (PCORI), and most recently provided scientific leadership as a Principal Consultant at Optum Genomics, United Health Group. Dr. Daugherty has published numerous peer-reviewed manuscripts across a wide-range of topics and has served as a guest lecturer over the past decade at George Washington University Milken Institute School of Public Health.
Rebekah Angove
Rebekah SM Angove, PhD is a health services researcher, non-profit executive, and leader in patient engagement. Through her PhD training and practical experience in public health, she has extensive expertise in the principles and methodology of patient and community engagement, participatory processes, patient centered outcomes research, and the integration of patient experiences/patient reported outcomes into care, research, and policy.
Dr. Angove currently serves as EVP of Research and Evaluation at Patient Advocate Foundation (PAF), providing strategic oversight and leadership to their research portfolio, data and analysis team, and evaluation efforts. Dr. Angove is also the Executive Director of PAF’s Patient Insight Institute, strategically partnering with research, healthcare, and policy leaders to integrate patient-centered evidence and insights into transforming healthcare. The work of the Patient Insight Institute specifically focuses on elevating the voice of diverse patients that have historically been underrepresented in these spaces.
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